Surgery Success

Whitnee's Surgery went really well yesterday, it went better then they expected. She intubated and extubated with no problem :) Which is great for a child with SMA. She picked purple casts and she is constantly asking to take them off. (it will be a long 6 weeks). Her Dr. said she can start standing next week or as soon as she is feeling better, which surprised us but were really excited to here we could start standing rather then waiting 6 weeks.

I have kept her pretty drugged up with meds for the pain. But other then that she is doing great! We were able to come home yesterday around 8 p.m. which really excited us to not have to spend the night. That and you never sleep in the hospital, they are always touching, poking, etc... you the whole time you are there. I thought that sleep was one of the best things to help in recovering from sickness, surgery, etc... but I don't think hospitals believe that.

When Whitnee got home she slept till 8:00 this morning, and boy did she need it. She drove Wally (her wheelchair) around this afternoon for a bit which did perk her up some. Thanks for all of your support and e-mails we sure appreciate it. I will post pictures later.

Surgery Scheduled

Back in March I believe, I took Whitnee up to Shriner's for her 6 month visit. As we talked with the Dr. we were informed that Whitnee would need both her Achilles Tendons stretched. We have tried to prolong this procedure for as long as we can do to the recovery time and even the risk we take in intubating Whitnee again. We even contacted Dr. Swoboda hoping she would discourage it. But she was in support of doing it asap, so we can get Whitnee standing in her stander again for an hour. They told me that it would be this summer, we were thinking early summer.

I actually got the phone call today informing us that Friday Whitnee is scheduled for surgery. We will have a 3 day stay in the PICU and from what I am told she will be casted from just below the knee down to her toes for 6 weeks :( From then on I don't know what will happen.

So we ask that you remember her in your prayers that her surgery will go well with no complications (breathing etc....) and that her recovery will go well too.

Thanks for all your support. I will up date the blog on her progress soon.