Saturday, June 27, 2009

27 Days and Counting

We Started out our summer in the PICU up at Primary Childrens Hospital. Whitnee ended up with an awful virus called the Parainfluenza3 (croup) basically the worst kind you can get, and is compared to RSV. With her SMA it really hit her lungs hard. She has been intubated 2x this stay and so far has had one surgery.

Here she is on our first day in the ICU.

This is after her 2nd intubation
with her most constant and favorite Nures

This is bath time, she is getting her hair washed
and decided to put her hand in the water to splash,
to me it looks like she is at the spa. lol

They finally gave her permission to sit in
"EVA" her wheelchair, as you can tell she
is very happy about that.

This is Pet Therapy that comes to visit her, it
helps to boost her spirit. This is one of the dogs
his name is Elliot

This is Music Therapy that comes twice
a week and boy does she love it.

She loves to dance while they sing to her.

They are so good with her.

Family visit
(Kort is at girls camp)

This was way fun, they asked Whitnee
if she and her brother Nic (kort was at camp)
would paint a ceiling tile.
So here they are painting.

Finished project now hangs in the PICU
outside her room.
They did a great job.

We are taking it day by day waiting for her lung to pop open,
it has been and is a very slow process.
Thanks to everyone for all your support, prayers and visits we really
do appreciate it!!!


Tara & Mark said...

I am so, so sorry you guys have been in there that long! Croup is a nasty bug on its own but throw SMA in there and I can only imagine what you guys are going through. Give her kisses and hugs from us and we are thinking about you. Let us know if you need anything?

Megan said...

Poor little sweetie! We will keep her in our prayers.

The Marrott Family said...

Oh Anna, I am so sorry your little one isn't feeling well. It broke my heart to see her in those pictures. Hang in there and know that you're in my thoughts and prayers. Give her a squeeze for me! :)

Jason said...

I'm so sorry to hear Whitnee is sick. What surgery did she have? I'll keep you in my prayers. Hang in there and keep up the positive attitude. Remember you are an amazing Mom. Don't forget to give yourself a break from the PICU once in a while. Please give Whitnee a hug for me. Love you both, Cadey

April said...

OH Anna, I'm so sorry you've been in the hospital for so long! I know exactly what that feels like:) Hang in there! Hope you are headed home soon! Anything I can do to help?
Sending lots of love!!

Dan & Brooke said...

Keeping you guys in our prayers. You always are so positive and I really appreciate it.

A.J. Dub. said...

Hey there,
Sounds like no fun at all! Let me know if you need anything that I can do from a million miles away. Email me your mailing address, I bet the kids would love to make some cards.