Monday, April 19, 2010

Surgery pic's and update.

I am sorry it has taken me a few days to post.
Whitnee eneded up having Surgery on Friday the 16th on her feet.
Nate and I went in a little nervous because of what the Surgeon had explained to me what she planed on doing.
She said that they were going to make a small incision in the back of her ankle and cut the tendon and let it fly on both feet, and on the left foot she would make an incision on the arch of her foot and release the tendons there to help flatten out her foot.
I was NOT okay with the thought of the Achilles Tendon being cut and NOT reattached.
As we sat down with the surgeon on Friday morning she went into a lot more detail about the surgery  (which I wish she would have done a week earlier so I would not have stressed so much)
But she informed us that the tendon she would cut would not affect her foot as we had expected it to, and that there are 3 other muscles that help in doing the same thing so her foot would still function as it should. 
They just wanted to get her standing.

Here she is with Daddy before they took her back to surgery.
(versed in her system she was really loopy)

Here is the Anesthesiologist getting ready to take her back to surgery.

The Surgery took 2 hours and we were really excited to here that she extubated with out any problems right after surgery. GREAT NEWS!!!
BUT the Anesthesiologist had to pull her top two teeth (because they were loose) so there was no risk of her aspirating on them during surgery.

Here she is after Surgery, she looks so good
(even with missing teeth)

We were really releaved to hear that the Surgeons did not cut her Achilles Tendon, they eneded up reattaching it after all.  They did release the tendons in the arch of her foot and ended up cutting the tendon that helps you flex your toes due to the fact that it was so tight it was part of the problem.
(So basically she can't pick up things with her toes off the floor now, but she could not before so no big deal.)

The picture above shows her casts wrapped in co ban, After putting the casts on they cut them to help with swelling, She ended up having so much drainage that they ended taking the casts off and putting on another set before we got to go home on Saturday.






 After the Anesthetic finally wore off all she asked for was a wagon ride.
It took most of the day to finally get one up to the ICU. Due to our nurse having 2 kids to watch over so when she finally got in it she was really excited.
I love the smile on her face.

We now prepare to go back on the 28th of April where they will again take her into the OR, remove the casts, tighten the stitches on her foot, mold her feet for her AFO's and then recast them.
(they wanted her to be under the anesthetics for all of this and after watching them change the casting in the ICU on Saturday I am totally okay with that.)
Then I think we will finally be on a road to recovery after all of this.

Thanks for all your help and prayers, we truly are blessed with great friends and family.



Nic's Turns 10

Nic celebrated his 10th birthday on April 10th.
His day started out with his BIG sister making him Breakfast in bed,
she wanted to get him something but was short on cash, so this is what she ended
up coming up with. I think it was really sweet, and he Loved it.
(pancakes, toast, green eggs and orange juice)


 His Birthday present




I wrapped it multiple times
(such a nice Mom)

 
I think he is a little excited.


I love his the excitement on his face.




 
Nothing like a New Ipod Nano.
 
 
and a Itunes Card. and Cash.

(thanks Nana, and Grandpa and Judy).

HAPPY BIRTHDAY NIC!!!!

Friday, March 26, 2010

Pine Wood Derby

Our Boy Scouts had their annual Pine Wood Derby Race this week.
I was not able to go due to the fact the Young Womans was the same night so I got
to stay home with Whitnee because it is still RSV season.
So no pictures were taken of the actual event, which made me sad.
Nate is the Cub Master so he was really busy trying to keep things on track (haha)
and moving. With 30 cars it was quite hectic.
.
It was really fun to watch Nate and Nic work on the car. Nic wanted his car
to look like Bumble Bee from Transformers (if only we could get it to transform)
and I think they did an awesome job making it look like that.


Nic's Car

Nic came home and said his car took 1st place
5 times and 2nd place once

Nic took 3rd place over all!


He was really excited.
GREAT JOB BUDDY WE ARE REALLY PROUD OF YOU!!!!!

TOOTH FAIRY

A few months ago while getting dinner on the table I looked down at Whitnee and noticed that she was missing her front bottom tooth. As got looking in her mouth I discovered that the other 3 front teeth were loose too. I panicked, not knowing if this was related to her SMA or just a fluke thing. So I rushed her into the Dentist office to see what was going on.

He comely told me that her permanent teeth were coming in.
WHAT SHE IS ONLY 4!!! (she turned 4 in October) He said it was not uncommon and that she is only 1 1/2 years early. (great she got her moms teeth).

He sent us home telling us to watch the other 3 so she does not aspirate on them!
So last night I was checking her teeth making sure the
really loose one was still there and that she did not swallow it. I noticed it was ready to come out, it was now or take the risk of her swallowing this one too.
So both Dad and I tried pulling on it for a bit, and finally a CUTE LITTLE TOOTH came out!




Whitnee showing off her new found whole.
(her cute little lisp is even more adorable now)


The TOOTH FAIRY came and she
got one quarter for each tooth.

(could not forget the one she swallowed)

Her face say's it all!!!!