Home again Home again.

We finally made it home! 46 days in the PICU is way to long for anyone. I did quickly learn that we were by no means the longest one there either, there were many heart babies there who had been there much longer so we were grateful to come home.

Whitnee was not okay with everyone running through
the sprinklers with out her so here is Bro and Sis
helping her run through the sprinklers.
As she put it "I wet, I cold"

The day before we came home (I think)
finger painting everything as you can see.

I can count on one hand how many times whitnee
has done tummy time in her life. This surprising enough
is the second time in the hospital and the first time not
complaining. (Thank you Barbie 12 dancing princesses)

Whitnee doing her breathing treatments, very happy
to have her mask off.

Not much to do in a hospital when you are
visiting, so Nic is listening to his MP3 Player.

Kortnee finger painting with Whitnee

The girls finger painting.

Whitnee fell asleep coloring her picture.

Whitnee right after extubation (removing the
the breathing tube). Not to happy about the
breathing treatment she had to do.

This Is Jennifer one of our favorite nurses, she also
became a part of our family while we were there
The last time we saw her as she was leaving her shift for the
day, Whitnee looked at her and said "You Stay"
It just broke her heart, it was way cute.


We are so glad to be home, Whitnee is doing really well on all her treatments, which we are doing every 3 hours. Yes we are all sick of doing them but we have about 20 more days to go. Kortnee and Nic sure have been a great deal of help, they now do her CPT and Cough Assist and they are really good at entertaining her while during the treatments.

WE ARE SO THANKFUL FOR ALL OUR FRIENDS AND FAMILY WHO CAME TO VISIT, CALLED, HELP WITH MEALS, FOR THE SERVICE DONE, AND FOR ALL THE PRAYERS GIVEN IN OUR BEHALF. SHE RECOVERED AND HAS DONE SO WELL BECAUSE OF IT.
THANK YOU SO MUCH.

27 Days and Counting

We Started out our summer in the PICU up at Primary Childrens Hospital. Whitnee ended up with an awful virus called the Parainfluenza3 (croup) basically the worst kind you can get, and is compared to RSV. With her SMA it really hit her lungs hard. She has been intubated 2x this stay and so far has had one surgery.

Here she is on our first day in the ICU.

This is after her 2nd intubation
with her most constant and favorite Nures
Jodie.

This is bath time, she is getting her hair washed
and decided to put her hand in the water to splash,
to me it looks like she is at the spa. lol

They finally gave her permission to sit in
"EVA" her wheelchair, as you can tell she
is very happy about that.

This is Pet Therapy that comes to visit her, it
helps to boost her spirit. This is one of the dogs
his name is Elliot

This is Music Therapy that comes twice
a week and boy does she love it.

She loves to dance while they sing to her.

They are so good with her.

Family visit
(Kort is at girls camp)

This was way fun, they asked Whitnee
if she and her brother Nic (kort was at camp)
would paint a ceiling tile.
So here they are painting.

Finished project now hangs in the PICU
outside her room.
They did a great job.


We are taking it day by day waiting for her lung to pop open,
it has been and is a very slow process.
Thanks to everyone for all your support, prayers and visits we really
do appreciate it!!!

K's Spa Party

Kortnee turned 12 this year which was so much fun, her Aunt "Z" basically threw it for her this year since we were in the hospital with Whitnee.
So they had a Spa Party, Manicures and Pedicures, and then they did each others hair and
watched Penelope (way cute movie).

Here is the gang!

We had our family Party at the hospital with Whitnee,
Roller Blades, make up :) and Ears Pearced
were the gifts this year.

To top off the Birthday week for her she got to go
to girls camp too, so in all this will be a birthday she will never forget.

We Love you Sis,
Happy Birthday!!!

Catch Up!

Ok I was told today by a friend that I am doing an awful job at updating my blog. Which I have to agree. I was although glad to know that at least one person is viewing it! I will say this though Face Book has not helped in this matter at all.

Nothing is new at our house which is fantastic news!!! We have just had a long winter cooped up for the last 5 months. Spring can not come fast enough.

Here are a few photos over the last few months, to let you see what has gone on in our lives.

This is the blanket I worked on this winter.

Kort holding her new cousin Justin.

wishing she lived closer so she could babysit.

Isn't she Beautiful!!!

Nic, Kort and Justin

Nic earned his BobCat :)

Nic putting on my Pin.

Hugs all around. We are so proud of you Nic.

Great Job.

Whit at pool therapy.

Whit standing at pool therapy.

Due to pool therapy Whit now stands for 1 hour

in her stander. So we are baking all the

time to help pass the time.

Here she is making cookies

Anyone for a cookie.

(she does not like them they are too sweet)

She a BIG help in the kitchen!

Well that is our life at a quick glance.

We are all doing well and staying healthy.